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Cystic fibrosis and mental health

Cystic fibrosis and mental health

	John Hunter Hospital and John Hunter Children's Hospital Cystic Fibrosis services are part of a national research project to identify and respond to mental health concerns of people with Cystic Fibrosis. Clinical staff have commenced routine mental health screening of Cystic Fibrosis patients as a priority during clinical visits. The teams will need to build strong connections with local mental health care providers across the district for appropriate and efficient referral and support.
	Cystic fibrosis
	Policy compliance procedure. Cystic fibrosis management. PD2017_013:PCP 2
	Sheehan J, Hiscock H, Massie J, Jaffe A, Hay M. Caregiver coping, mental health and child problem behaviours in cystic fibrosis: a cross-sectional study. Int J Behav Med. 2014;21(2):211-20.
	Besier T, Goldbeck L. Growing up with cystic fibrosis: achievement, life satisfaction, and mental health. Qual Life Res. 2012;21(10):1829-35.

Cystic fibrosis 101
	Professor Peter Wark Centre for Healthy Lungs, University of Newcastle Department of Respiratory and Sleep Medicine, John Hunter Hospital NHMRC Centre of Excellence in Severe Asthma		Screencast
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	Eckford PD, Li C, Ramjeesingh M, Bear CE. Cystic fibrosis transmembrane conductance regulator (CFTR) potentiator VX-770 (ivacaftor) opens the defective channel gate of mutant CFTR in a phosphorylation-dependent but ATP-independent manner. J Biol Chem. 2012;287(44):36639-49.
	Ramsey BW, Davies J, McElvaney NG, Tullis E, Bell SC, Drevinek P, et al. A CFTR potentiator in patients with cystic fibrosis and the G551D mutation. N Engl J Med. 2011;365(18):1663-72.
	Wainwright CE, Elborn JS, Ramsey BW, Marigowda G, Huang X, Cipolli M, et al. Lumacaftor-Ivacaftor in Patients with Cystic Fibrosis Homozygous for Phe508del CFTR. N Engl J Med. 2015;373(3):220-31.
	Quittner AL, Goldbeck L, Abbott J, Duff A, Lambrecht P, Sole A, et al. Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: results of The International Depression Epidemiological Study across nine countries. Thorax. 2014;69(12):1090-7.

Cystic fibrosis 102
	Dr Jodi Hilton Centre Director, Cystic Fibrosis Centre Paediatric Respiratory Physician, John Hunter Children's Hospital		Screencast
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The lived experience of cystic fibrosis
	Ms Ashlee Peck		Screencast
			mp4

Caring for a child with cystic fibrosis
	Ms Wendy Wood		Screencast
			mp4

What am I going to do with my CF patient?
	Dr Ben Britton Clinical and Health Psychologist Consultant Liaison Psychiatry Mater Hospital		Screencast
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	Ernst MM, Johnson MC, Stark LJ. Developmental and psychosocial issues in cystic fibrosis. Pediatr Clin North Am. 2011;58(4):865-85, x.

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