Locate appropriate resources and data repositories and other open data sources that include relevant data sets that could be used as part of new research.
HNELHD
Contact the Research Office for more information about collecting patient information for research. Check whether ethics or governance approval is required prior to commencing a research project.
NSW Health
NSW Health and Medical Research – Data tools and resources – links and information on available datasets.
Australian
- Australian Data Archive (ADA) a national service for the collection and preservation of digital research data. ADA holds over 6,000 datasets from more than 1500 projects and studies and includes health studies
- Australian Research Data Commons (ARDC) enables researchers to access, contribute and use quality research data
- Health Data Australia is a national catalogue of Australian health data designed for researchers who want to discover and request access to data for their research
- Maiam Nayri Wingara Aboriginal and Torres Strait Islander Data Sovereignty Collective develops Aboriginal and Torres Strait Islander data sovereignty principles and also focuses on identifying Aboriginal and Torres Strait Islander strategic data assets. This includes development of an Australian set of Indigenous Data Governance protocols
- Research Data Australia helps find, access and reuse data for research. Data is not stored at Research Data Australia but provides descriptions of and links to the data from data publishing partners
International
- Clinical Study Data Request facilitates the sharing of patient level data from clinical study sponsors and funders
- DANS Data Archiving and Networked Services to deposit research data, search for datasets and research projects and provide education on RDM
- Figshare is a flexible open access repository where any file format may be uploaded and shared either privately or made public
- Harvard Dataverse is a repository includes medicine, health and life sciences
- Health and Medical Care Archive (HMCA) preserves and disseminates data collected by health and healthcare research projects funded by the Robert Wood Johnson Foundation (RWJF)
- Physionet was established under the National Institutes of Health (NIH). PhysioNet offers free access to large collections of physiological and clinical data and related open-source software
- Sicas Medical Image Repository (SICAS) acquires and stores medical images and processes data for research and applications in medicine
- WHO Global Health Observatory Data Repository provides access to over 1,000 indicators on priority health topics.